People

AboutFace is led by UKRI Future Leaders Fellow Dr Fay Bound Alberti. Based in the department of History at the University of York, it has a core team who manage a range of research and public engagement activities.

The Team

AboutFace has a core team that investigates the themes of the research project and delivers its public engagement activities.

  • Dr Fay Bound Alberti

    Fay is the project PI and in 2019 became one of the first UK Research and Innovation Future Fellows for the AboutFace project. She is a Reader in History at York and Co-Director of the Centre for Global Health Histories, and was the co-founder of the Centre for the History of Emotions at Queen Mary, University of London. Fay works on the history of medicine, gender, emotion and the body. Her books include Matters of the Heart: History, Medicine and Emotion (2010) and This Mortal Coil: The Human Body in History and Culture (2016) and A Biography of Loneliness: The History of an Emotion (2019). She was worked at a senior level in funding, as Head of Philanthropy for the Arcadia Fund, Head of Medical Humanities Grants for the Wellcome Trust, and as a freelance writer and consultant for charities, universities and organisations like the Nuffield Council on Bioethics.

  • Dr Victoria Hoyle

    Victoria is a Research Associate on the AboutFace project. She specialises in the use of participatory, qualitative and action methodologies in history research, working directly with individual groups affected by her work. She is also interested in the social, cultural and emotional impact of historiographical and public history practices, particularly in areas of media interest. Victoria’s primary research interests are in social care, health and wellbeing in the 20th and 21st centuries, with a focus on difficult and contentious histories of trauma and violence. From 2017 to 2019 she was the Research Associate on the AHRC-funded Memory – Identity – Rights in Records – Access (MIRRA) project in the Department of Information Studies at UCL, working with care-experienced adults on issues of memory, identity and recordkeeping. Originally a medievalist, Victoria subsequently qualified as an archivist and worked in archival practice for 11 years prior to her return to academia. She was York’s City Archivist (2013 to 2017) whilst completing her PhD. Victoria is a joint editor of the Archives and Records journal.

  • Dr Sarah Hall

    Sarah is Public Engagement and Events Officer for the AboutFace project. She is an experienced events manager with significant experience in the Higher Education sector, and is interested in engaging with creative methods for disseminating academic research to different audiences. She is also interested in academic outreach, and is committed to making research widely accessible to non-specialist audiences. Sarah is also a historian of the early modern transatlantic puritanism, with a particular focus on communities, correspondence and social networks in the seventeenth century. More broadly, this has generated an interest in social history and the histories of ‘ordinary’ people and their lived experiences. Using a combination of qualitative and quantitative methodologies, Sarah's research is interdisciplinary and engages closely with digital humanities. She completed her PhD at the University of East Anglia in 2019.

Advisory board

The project is supported by a distinguished Advisory Board with specialisms drawn from neuroscience, law, medicine, linguistics, nursing, transplantation, psychology, lived experience and public engagement. The Board meets annually to advise on the aims and objectives of the project.

  • Professor Richard Ashcroft

    Professor Richard Ashcroft is Professor of Bioethics and Deputy Dean of the Law School at City, University of London. He is an experienced researcher and teacher of bioethics, with nearly 25 years of experience and more than 200 publications in the field. Before his career in bioethics, he trained in History and Philosophy of Science at Cambridge University. He works mainly on research ethics, public health ethics and ethics of new technologies. He takes a particular interest in approaches drawing on human rights, feminist scholarship, disability studies and political philosophy

  • Dr Alex Clarke

    Alex is a consultant clinical and health psychologist. She joined Changing Faces in 1995, a charity providing support to people with facial disfigurements, where she developed information and programmes of support for people with an unusual appearance caused by trauma, burns and medical conditions. From 2002 – 2014 she set up and led a group of psychologists working in plastic and reconstructive surgery at the Royal Free NHS Foundation Trust in London. In addition to establishing the role of psychology in the multidisciplinary plastic surgery team, she led the psychology strand of the facial transplantation programme. Since retiring from the NHS has been a visiting professor at Centre for Appearance Research and has worked on a range of projects with medical colleagues to help further their understanding of the psychological factors involved in choices about altered appearance.  Current research interests include the development and evaluation of brief screening tools for surgeons working in private cosmetic surgery settings and online interventions to manage visible difference in appearance.

  • Dr Antonia Cronin

    Antonia is a Clinical Research Consultant Nephrologist at the NIHR Biomedical Research Centre, Guy's and St Thomas' NHS Foundation Trust, and MRC Centre for Transplantation, King's College, London. She is a Trustee of the Governing Body of the Institute of Medical Ethics, and appointed member of the UK Donation Ethics Committee (UKDEC). Her research explores the ethical and legal analysis on matters raised by scientific research and clinical practice, in particular the regulation of research and its translation into clinical practice. Her work draws on interdisciplinary insights gained from science, medicine, social science, philosophical bioethics, public policy and the law. Antonia  is currently collaborating with faculty from the Department of Social Science, Health and Medicine on a seminar series on issues relating to transplantation and bioethics. She is an affiliate member of GHSM’s Biomedicine, Ethics and Social Justice research group.

  • Dr Daniel Glaser

    Daniel Glaser is a neuroscientist and writer. This year he was a Winston Churchill Fellow travelling across America to research what AI can tell us about being human. He was Founding Director of Science Gallery London, a £30m capital development in the heart of the city, where art and science collide. Daniel was the world’s first scientist in residence at an arts institution and the first scientist to judge the Booker Prize. For two years until 2018 he wrote a weekly column in the Observer Magazine and his Guardian podcast series have had half a million listens. Following fifteen years of neuroscience research, he moved to Wellcome Trust, where he ran a £10m annual funding portfolio for public engagement and the arts. As an undergraduate at Cambridge he studied maths and then English literature, and was a combat medic in the army reserves.

  • Professor Ludmilla Jordanova

    Ludmilla Jordanova is Emeritus Professor of History and Visual Culture at Durham University, where she was Director of the Centre for Visual Arts and Culture 2015-19.  She is also an Honorary Professorial Fellow at the Edinburgh College of Art, University of Edinburgh.  She has been a Trustee of the Science Museum Group since 2011, and was a Trustee of the National Portrait Gallery 2001-9.  Her books include History in Practice (third edition 2019), Defining Features: Scientific and Medical Portraits 1660-2000(2000), and Physicians and their Images (2018).  She writes about visual culture, the histories of science and medicine, cultural history and the nature of historical practice.  Among her current writing plans are books on portraiture and on ethics in historical practice. She is based in Scotland.

  • Mr James Partridge

    James Partridge OBE, DSc (Hon), FRCSEd (Hon) is the Director of Face Equality International, (2018) an alliance of NGOs and charities which campaign for ‘face equality’ and challenge disfigurement prejudice and discrimination. Previously, he was the Founder and Chief Executive of Changing Faces, the leading UK charity supporting and representing people with disfigurements. He launched the charity after the positive response to his book Changing Faces: The Challenge of Facial Disfigurement passing on lessons from his experience of severe facial burns at the age of 18. He has won a number of national awards, including the Third Sector award for Most Admired Charity Chief Executive in 2010 and the Beacon Prize for Leadership. He has served on public bodies such as the National Institute for Clinical Excellence. He writes and presents widely on disfigurement, disability, inclusion and social entrepreneurship and in 2009 he presented the news on Channel 5, becoming the first newsreader with a facial disfigurement.

  • Professor Anne Marie Rafferty

    Anne Marie Rafferty, RN CBE FRCN FAAN FMedSci, is Professor of Nursing Policy and President of the Royal College of Nursing. She is a historian, health workforce and policy researcher. She was seconded to the Department of Health to work with Lord Ara Darzi on the Next Stage Review of the NHS and awarded a CBE for services to healthcare in 2008. She served on the Prime Minister’s Commission on the Future of Nursing and Midwifery 2009-10 and been recipient of various awards including Nursing Times Leadership Award (2014) and Health Services Journal Top 100 Clinical Leaders Award in 2015. She holds fellowships from the Royal College of Nursing, American Academy of Nursing and was elected into the Fellowship of the Academy of Medical Sciences in 2019. She co-lead a Student Commission on the Future of the NHS supported by NHS England and was a member of the Parliamentary Review of Health and Social Care in Wales, which reported in 2018. She was appointed member of the NHS Assembly in 2019.

  • Professor Nichola Rumsey, OBE

    Nichola is Emerita Professor of Appearance Psychology, University of the West of England, where she founded the Centre for Appearance Research in 1992 and was its Co-Director until 2018.  She has attracted over £9m in funding to support research on appearance and has published widely in the field. Nichola was a member of the RCS Expert Groups on Face Transplantation from 2003-2004 and 2006-7. She has led several EU funded projects and was the Chair of COST Action IS1210 “Appearance Matters” from 2013-2017.  Nichola has been elected an Honorary Life Member of the South African Burns Society, the British Association of Aesthetic Plastic Surgeons (BAAPS) and the Craniofacial Society of Great Britain & Ireland (CFSGBI) and was appointed OBE in 2016 for services to people with disfigurement.  Nichola now works as a Consultant Research Psychologist and is developing training and clinical aids designed to improve standards of patient care in the cosmetic and reconstructive plastic surgery sectors.

  • Dr Mandana Seyfeddinipur

    Mandana Seyfeddinipur is a linguist who directs the Endangered Languages Documentation Programme at SOAS, which provides around £1,000 000 annually for the documentation of endangered languages across the globe since 2010. Since 2014 she is also directing the Endangered Languages Archive (ELAR). Her main research interests are language documentation, cultural and linguistic diversity in language use, video in language documentation, and multimodality with a focus on gesture, visual mode of language, pragmatics, psycholinguistics, and language production. She teaches courses and classes on the visual mode of language, the use of video in language documentation and fieldwork, ELAN annotation, psychology of language, and language use.  She is also a Senior Research Fellow at the London Middle East Institute (LMEI) and member of the Centre for Iranian Studies Member Multilingualism and Language Learning Collaborator

  • Professor Manos Tsakiris

    Manos is Professor of Psychology at the Department of Psychology, Royal Holloway, University of London, where  is leading the Lab of Action & Body (LAB). His research is highly interdisciplinary and uses a wide range of methods to investigate the neurocognitive mechanisms that shape the experience of embodiment and self-identity. He is the recipient of the Young Mind and Brain Prize in 2014, of the 22nd Experimental Psychology Society Prize in 2015, and the NOMIS Foundation Distinguished Scientist Award in 2016. Since 2016, he is leading the interdisciplinary Body & Image in Arts & Science (BIAS) project at the Warburg Institute, and since 2017 the INtheSELF ERC Consolidator project at Royal Holloway that investigates the role of interoception for self- and social-awareness.

Lived Experience Advisory Panel (LEAP)

AboutFace benefits from the input of a skilled Lived Experience Advisory Panel (LEAP) that meets annually to advise on various aspects of the project and its outputs.

  • Dr Amanda Bates

    Dr Amanda Bates, CPsychol, is a Patient Experience and Public Involvement Lead in the Centre for Health Services Studies at the University of Kent. She brings health researchers and service users together to enable patient involvement in the design and management of research using best practice principles of Patient and Public Involvement (PPI). This knowledge and expertise has resulted in invitations to speak nationally and internationally on these topics within the fields of appearance and facial difference (research and service delivery). Aside from these roles, Amanda conducts freelance training in disability equality, resilience and living with difference. As someone with a facial difference from birth, Amanda is also involved with the charities Changing Faces, The Cleft Lip and Palate Association (CLAPA) and Face Equality International and has carried out media work on behalf of all three organisations.

  • Dr Kathleen Bogart

    Kathleen Bogart, PhD is Associate Professor of Psychology at Oregon State University. She is a social/health psychologist specializing in ableism, or stereotyping, prejudice, and discrimination toward disability. She has a facial difference herself, and based on her professional and personal lived experience has served on several boards, including the American Psychological Association Committee on Disability Issues in Psychology, the Moebius Syndrome Foundation Scientific Advisory Board, the Massachusetts Department of Public Health Birth Defects Monitoring and Research Program Advisory Board, and the Rehabilitation Psychology editorial board. Much of her research focuses on the psychosocial implications of living with rare disorders and facial differences, such as Bell's palsy and Moebius syndrome. Her work finds these conditions are stigmatizing because people with them are frequently misunderstood, isolated, and blamed. She is an advocate for building social support and resisting stigma in these communities.

  • Marc Crank

    3Marc Crank is a third Sector leadership and management consultant. He has been campaigning for more than thirty years as a disability and equality rights activist and also has twenty years’ experience as a regional and national charity CEO, specialising in disability/health advice, support and advocacy. Committed to multi-agency, cross-sector collaboration, Marc won an award in 2007 for his contribution to cross-sector partnership development across Staffordshire. Passionate about equality and empowerment of marginalised groups Marc combines lived experience with the skills and knowledge gained from his varied work and voluntary roles.

  • Mr James Partridge

    James Partridge OBE, DSc (Hon), FRCSEd (Hon) is the Director of Face Equality International, (2018) an alliance of NGOs and charities which campaign for ‘face equality’ and challenge disfigurement prejudice and discrimination. Previously, he was the Founder and Chief Executive of Changing Faces, the leading UK charity supporting and representing people with disfigurements. He launched the charity after the positive response to his book Changing Faces: The Challenge of Facial Disfigurement passing on lessons from his experience of severe facial burns at the age of 18. He has won a number of national awards, including the Third Sector award for Most Admired Charity Chief Executive in 2010 and the Beacon Prize for Leadership. He has served on public bodies such as the National Institute for Clinical Excellence. He writes and presents widely on disfigurement, disability, inclusion and social entrepreneurship and in 2009 he presented the news on Channel 5, becoming the first newsreader with a facial disfigurement.

@CAR_UWE researchers are looking for UK adults with facial palsy going through psychological/social difficulties related to looking different, to try ACT It Out, a prototype mobile app. If interested pls DM @Fabio_of_CAR, email Fabio.zucchelli@uwe.ac.uk or call 0117 32 83882

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